Unmasking the Adult Experience in SMA: The Latest Evidence and Patient Perspectives
Unmasking the Adult Experience in SMA: The Latest Evidence and Patient Perspectives is organized by Prime Education, LLC.
Release Date: April 26, 2023
Expiration Date: April 25, 2024
Description:
Tune it to this webcast as two patients share their personal stories, everyday challenges, and care experiences associated with living as an adult with spinal muscular atrophy (SMA). Responding to these patient testimonials, two expert SMA faculty will discuss the burden of SMA in adulthood, and through case-based discussions, will take a deep dive into the latest evidence on current and emerging SMA treatments, strategies to personalize treatment and management approaches to adults' goals and specific needs, as well as engagement strategies to improve patient-physician communication and shared decision-making (SDM).
This activity is delivered in partnership with Muscular Dystrophy Family Foundation (MDFF).
Agenda:
• Underlying Mechanism of Disease and Corresponding Symptomatology to Guide Prompt, Accurate SMA Diagnosis in Adults
• Overview of Disease Burden: Real-World Insights From Adult SMA Patients
• Adult Experiences in Care
• Clinical and Psychosocial Manifestations in Adulthood
• Impact of SMA Burden on Quality of Life
• Evolving Clinical Data in the SMA Treatment Landscape and Potential Impact on Adult Patients
• Safety and Efficacy Data of Current and Emerging Treatments
• Differentiating and Individualizing Treatment Approaches Based on Clinical Evidence and Patient Characteristics and Therapeutic Goals
• Comprehensive Patient-Centered Care: Addressing the Unique Needs of Adult Patients
• Leading Strategies for Patient Engagement and Shared Decision-Making
• Developing Care Plans Encompassing Physical and Mental Health
• Effective Approaches for Timely Referrals, Multidisciplinary Care Coordination, and Care Retention
Learning Objectives:
• Assess the underlying etiology and pathophysiology of SMA, including SMA subtypes and connection to clinical manifestations in adults, to support early recognition of signs/symptoms and prompt, accurate diagnosis in this age cohort
• Describe the unique clinical and psychosocial burden of SMA in adult patients
• Differentiate new and emerging treatment approaches for adults with SMA, including disease-modifying agents, based on their efficacy and safety data and mechanism of action, and the importance of treatment
• Align clinical practices with current evidence, guideline recommendations, and patient-specific characteristics, goals, and preferences to develop personalized, risk-informed treatment and monitoring plans
• Integrate effective strategies for engagement and shared decision-making with adult SMA patients, timely referrals, and multidisciplinary care to optimize treatment outcomes and quality of life.